Epidermolysis Bullosa Registry link
As a part of our comprehensive care program for Epidermolysis Bullosa ( EB), we are attempting to initiate a registry of EB patients. Below is the link that can be accessed by you to submit a referral. This can be done on a desktop, laptop, iPad, Tablets and all mobile smartphones. It just takes about 3 minutes and upon submission, we will receive an email. Our EB team would then contact the patient directly and liaise with you for care.
I would appreciate if you could store the link and kindly refer EB patients into the registry when you get a chance.
The link is https://chgregistryapp.
Thank you for your encouragement. I am sure a lot of patients would benefit from this.
Dr Ravi Hiremagalore
Consultant Pediatric Dermatologist and Adjunct Faculty Member,
Centre for Human Genetics, Bangalore
Manipal Hospitals, Bangalore
Ph: 91-80-28521832 ext 111 (Thursdays only)
Genetic Clinic: 91-9448894219